Validation of numbers of people with multiple sclerosis in the Norwegian Patient Registry

Takeaway

  • A comparison of the number of people with multiple sclerosis (MS) obtained from outpatient and hospital records, and the Norwegian Patient Registry (NPR), showed that while the NPR was broadly accurate, diagnosis was incorrect in approximately 1:10 people.

Why this matters

    Patient registries are regularly used for prevalence studies but may be susceptible to some inaccuracies and should be used in conjunction with other sources when greater accuracy is needed.